I have so many questions. How can you still have so many questions at my age I don’t know. Sometimes it seems to me that I should have it all figured out by this time. At 48 you would think we would have it all together yet I have seen younger people have it way more together than I seem to. Seems generations have changed so much in every way that I can hardly keep up. Don’t get me wrong I have done much in my life and very few things that I actually regret. I’ve been married, raised a family, expressed myself artistically and enjoyed many good things. I survived kidney disease and had a kidney transplant which has given me a new lease on life and for all of these things I am mighty grateful. Still. I don’t feel that I am exactly where I would like to be. Many times I have heard or read:
Where you are is where you’re supposed to be, right now.
I don’t know if that’s always accurate but I certainly hope so. I hope there is some divine guidance helping all of us through this journey with a good destination in mind because I am awfully close to the midlife crisis stage. The point where you don’t know which way is up because you’re not as far in life as you figured you should be. You begin to question where you’re going and why you haven’t gotten there yet. The biggest questions being:
What is my purpose?
Am I doing it right?
Am I the only person feeling this way about my life?
I know that I’m not but at moments like this you certainly feel as if you are. You feel as if you’re on a course you yourself are blind to. Just floating along with the tide hoping to find something good as you go about your daily life. At times you feel you’re just about to get a glimpse of something wonderful but then you loose sight of it for reasons unknown or perhaps because you’re afraid to see. Many times we are more fearful of moving and changing than staying stuck. W feel safe stuck. These are the things that I think of randomly as I get older. The questions I am trying to answer within myself. It is no small feat but I do believe we all have this journey to take and questions to answer but no matter how long it takes us to answer them I also believe we will all get there in time.
I am 48 and I sill wonder what love is. I have some ideas of what love is but at times I still wonder and I think its because every time I think I have it figured out I get knocked on my ass as God laughs and waves a preverbal finger my way saying “That’s not it”, you my dear have much yet to learn. And I know I do. I am a lover but I have a fair amount of fighter in me as well. I want to know things when I want to know them and I want to know them for sure. Love can’t be researched though, its the language of the heart and we are all just trying to figure it out in our own way. I know love is kind, patient, trusting and all that good stuff or at least its supposed to be that way. I am loving and I try to be kind although my patience sucks ass most of the time. This I know and have been told by several people. Still aside from those things, what is love to you?
To me it’s being there for the ones you claim to love.
Being honest even when you think it will hurt.
Trusting and keeping your word.
.Being faithful if it’s a relationship and treating the person as you yourself want to be treated. Of all of the other things I think this is what love is the most because if you treat others as you’d like to be treated yourself everything else falls into place.
What do you call love?
Only a person who’s been on dialysis or the people they allow on their journey know what its like and all of the additional complications that come along after you’ve been transplanted. It is an ever going road pebbled with pot holes and detours as well as open smooth stretches. Still it’s one we rather be on than the one we were before. I am one year into my transplant, on anti rejection medications I administer every 12 hours and living life as best I can. I must admit it’s been pretty smooth sailing for me and I am mighty grateful for I have met too many people who’ve had a very hard time even after we think it’s supposed to be easy.
Today there is a hurdle. The access I have not used for over a year has decided to clot on me and it’s pretty painful. I informed my doctor of the issue and now I must see a cardio vascular doctor to see what can be done to open it up which might mean surgery, don’t know yet. For those who have been on dialysis it feels like when you’ve had an infiltration, so you know the pain is real. I’m dealing with it as most of us must and do on a regular basis. We find strength from within and from those in our corner. We travel the road trying to avoid the pot holes and pray for smooth roads. Today I was called a trooper by someone I love but I don’t see myself that way. I am simply a survivor who has adapted to jumping these hurdles because the good times are worth living for.
To everyone on dialysis out there, may your roads be smooth. May your hurdles be few and most of all may your moments worth living for be many. THIS TOO SHALL PASS.
It’s our first full day on the train and what can I say but that its an adventure already. We are all so exiting and all talk at once about how great it is when we get together. I love my little bunk and I spend at least an hour a day just contemplating the view outside my little window. It’s absolutely gorgeous here and I wish I could have brought you along. We made a stop at Khabarovsk station today and got to look around a little.The station is huge! There were people smoking like crazy the smoke smelled diffrent and I kind of wanted to try it but I didn’t. Aicia was dying to smoke too, she is not one to be teased with nicotene. At the end she decided against it. I think if she had given in I would have too, once you’ve been a smoker all of the familiar feelings come back when you smell one. Anyhow, I have to get to the business of writing now but I will send you pics. Love you!
This trip so far has taught me to devote time to what’s important which for me in this case is self discovery. Solitude has surprised me. How much I enjoy just asking myself questions and answering them without all of the noise that might surround me on a regular day. I have learned that when I devote time to me and to my writing we both become richer and more full of life. We develop like an old polaroid picture, a little clearer and brighter. The clouds of the imagination part and we see the sun shinning a light on what it is we really need or want to say.
What is itthat makes me creative and gives me the ability to create?
That will be my focus today. I’m ready. Not nervous, just ready.