Only a person who’s been on dialysis or the people they allow on their journey know what its like and all of the additional complications that come along after you’ve been transplanted. It is an ever going road pebbled with pot holes and detours as well as open smooth stretches. Still it’s one we rather be on than the one we were before. I am one year into my transplant, on anti rejection medications I administer every 12 hours and living life as best I can. I must admit it’s been pretty smooth sailing for me and I am mighty grateful for I have met too many people who’ve had a very hard time even after we think it’s supposed to be easy.
Today there is a hurdle. The access I have not used for over a year has decided to clot on me and it’s pretty painful. I informed my doctor of the issue and now I must see a cardio vascular doctor to see what can be done to open it up which might mean surgery, don’t know yet. For those who have been on dialysis it feels like when you’ve had an infiltration, so you know the pain is real. I’m dealing with it as most of us must and do on a regular basis. We find strength from within and from those in our corner. We travel the road trying to avoid the pot holes and pray for smooth roads. Today I was called a trooper by someone I love but I don’t see myself that way. I am simply a survivor who has adapted to jumping these hurdles because the good times are worth living for.
To everyone on dialysis out there, may your roads be smooth. May your hurdles be few and most of all may your moments worth living for be many. THIS TOO SHALL PASS.
The last time I blogged I was still on dialysis twice a week two and a half hours a treatment. After six and a half years I was pretty much used to what my life was and how it was working out. Treatment didn’t bother me as much anymore and the pain was almost non existent or maybe I was just used to it.
Just as I was all used to it on September 3, 2016 I received the call that has changed my whole existence. I got a kidney! My transplant happened when I least expected it. With a heart full of prayers for loved ones and friends I went to Saint barnabas medical center for my gift. On September 4 I had a new battery and ready to begin a new life with no more issues. But can you say hold up?
Yes, we have no idea at least I had no idea that the transplant is just the beginning of the road. Not the end. The real work began after the blessing.
Let’s talk about recovery shall we?
I have been transplanted about three months now and currently in the hospital in a state I don’t even live in. I came to visit my mom for the holidays and my creatinine got too high so here I am admitted and awaiting. However I digress, I am still mighty blessed! Every day.
When you first get a transplant you need your meds every twelve hours. The amount of pills vary from 20 to 30 Pills a day depending on how your organ is settling. See this organ was never yours. It’s a gift so you need anti rejection medications so you won’t loose it. You must work to keep it. This is why I say the work begins after the blessing. Along with medication comes recovery from a long suture on your belly. I had 20 some odd staples holding me together. Its difficult to walk but as the days go by you begin to feel better, more alive and healthier. My hair grew inches and my nails that never grew began to grow. My skin glowed and I became, though still recovering a new person.
It is a difficult period in my life but full of miracles as well. I am getting there. Trust that I will.
Getting used to the meds and the doctor twice a week in the beginning takes some getting used to.
Blood work and urinalysis every week
Stint removal and fear of any little twinge on your access site wears on you but then you think about all of those years on dialysis and you’re mighty blessed and grateful despite side effects or anything else that comes along the most important thing to remember is that someone who died gave you life!
This is a path. It has been my destiny thus far. I am on a road after all and I never forget that every road has hurdles and bumps and some even have mountains to arrive at the other side. This is my road and although sometimes it’s difficult and a trial I am fully faithful that God gave me this kidney and road for a reason. With his help, guidance and blessing I have my new battery and I’m ready to walk!
Stay blessed and grateful!
I have been a mother for what seem like most of my life. My three, now grown children were the essence of what I did and where I went for now twenty seven years of my life and I would not trade it for the world. Seeing them grow has been my privilege and blessing. Being a parent gives you a new perspective on life and all its trials give you strength you never thought you might possess. Still life comes with changes and my greatest change has arrived, an empty nest! That trial that all mothers and fathers eventually go through after spending half their lives raising children. It isn’t easy trust me I’m sure there are many parent out there that have no idea what to do with themselves after their children have gone.
I was one of those parents. I was stuck in the role of being a mom and being there for my children was all I did. That’s what moms do and we don’t regret it one bit. I am very proud of all of my children and I am honored to have devoted my time to them, that’s why I had them. Still the time has come for me to write a better story for myself. It’s time to dream of a future of my own. There are still many blessings to look forward to. You, We still have a life to live. one that hopefully has many years left. As a woman I find we need a sisterhood of women to help us do this. A place to develop all the other talents we may have hidden or placed on the back burner to attend our loved ones. A group of like minded individuals to push us forward in our new adventure. We need mentors and a process by which to navigate and go to our destiny. This is your time!
What’s your story? What do you want for you? What is your dream?
Now, Go. Find it. Do it. Be it! I am with you.
Changes are something that seems to come weather you want it or not. Sometimes you see it coming, the necessity of it loud and clear.
The time has come for change.
It can be any type of change for anything and still take you by surprise and be completely unexpected yet somehow you know. You know when something is not working and when it needs to change, when you need to change.
- How do you take those first difficult steps to make effective and lasting change?
- What gives you the strength and purpose to move forward. You must be brave, I find.
You must be willing to do what you must without fear of how it will affect anyone else or their situation. I am not speaking of cruelty here or of not caring about people in general. I am speaking of doing what’s right for you. What makes you happy and leads you toward the purpose you find you are here for. Those are the greatest questions one must ask.
What makes you happy? Why are you here and what is your purpose. What do you want to get out of this life?
These questions have been plaguing me as of late. Breaking my concentration every time I find myself in a situation I know I don’t want to be in or doing something I don’t want to do. That’s where the knowing begins to surface and grow like a weed in your psyche. Making you unhappy. A symptom of being in a situation you don’t want to be in. A flashlight if you will on what you need to change. Those are poignant moments of clarity and we need to listen clearly and openly because they’re doors to we need to go through, roads we need to follow. Breadcrumbs in the forest of our destiny.
Have you ever sat down and really thought about what brings you peace?
Have you ever contemplated in silence perhaps what really gives you that sense of total serenity and what you are willing to do to find and keep it?
I am sitting here thinking about just that and decided why not write about it. It’s funny but when I thought about serenity and peace, money was not the first thing to come to me. I didn’t think boy if I was rich I’d have peace. The first thing I actually thought of was an island paradise and silence.
Not the type with a huge hotel or luxurious amenities but a small island with clear blue water and simple palm trees with a hammock in between. A little cottage not far behind with a room full of books, the one I love, a warm fireplace in a cozy living room, dressed in pastel colors. That’s what sounds like serenity to me. There are no delusions of grand living in my dreams of peace, just simplicity.
I think deep down we all feel this way. I believe all we want is simplicity. The ability to live without having to stress about the most unnecessary things, all those things we think we can’t live without. The rub comes down to this.
What are you willing to do to get it?
Are you willing to live simply?
To give up all of those things you think you just can’t live without if it means you’d have that feeling of complete serenity?
Where is that place for you and are you willing to go there?
For me the answer is yes. Then again I have always been a simple person. Dialysis has taught me that life is not all it’s cracked up to be and neither are all those things we feel we can’t live without. It is surprising what we really “need” to live. If you were to really think on it you’d find it’s not much at all. I’ll even wager that if any of us were trapped in a paradise island like the one I dream of, few would refuse to stay. Most would give up the rat race and maybe even read a book.
May we all find our serenity soon.