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The Power we give… I have had relationships before and many of them have really tested my resolve. I think most relationships begin similarly with this amazing attraction you swear you have never felt this strongly before, this superhuman feeling that you have finally found the right one, the love of your life and sometimes that is true. This relationship can be the one that lasts a lifetime I’ve seen it. Trust however that there will be trials. That you will have to pick your battles to fight and some will test your faith and most of all your resolve to even stay in it because sometimes you’re not just fighting circumstances you are fighting all of the trauma or issues of the person you’re with and people can sometimes make themselves quite difficult to love. Sometimes purposely hoping you will give up and give them the freedom to continue not having to face their issues. Maybe they’re comfortable with them. We all have a level of comfortability we are not willing to part with. I am comfortable in my ways but I am always willing to learn and accommodate for the sake of making my partner happy, sometimes too much and that is where sometimes for me the trouble begins. I am a giver. I give so much in a relationship that sometimes it leaves me feeling empty. I couldn’t clearly explain what about me makes me feel I need to be this way but I am. I tend to fall in love with my whole being. My heart, mind, body and soul all become fully invested in the relationship to the point where I loose myself and suffer on behalf of every little thing done to me. I take it all extremely personal and my wounds become infected with the poison of need and regret easily. Especially when I feel rejected by the person I love. In turn instead of retreating like some people will do I give more all in hopes that they will see me and what I’m worth. Not that I don’t know what I’m worth because I do but we all know the heart has a mind of its own. Still with enough ill treatment I give up and release the person fully because my release is as pungent as my love. When I release someone I release them completely. Delete everything I have ever done with them along with all the love I might have felt. Of course love is harder to release but once I have decided to release someone there is no going back. There is no friendship or future conversations to be had. There is just a clean slate and a new beginning for myself alone without the temptation of calling when I feel down or the need to back peddle because unlike others I never forget the persons faults or what they did to cause me pain. I become clear and enlightened in every respect and act accordingly. That is the only way I have learned to save myself thus far. I give, yes but that in no way implies that one would have any ability or leave to take advantage of me. What I give I give freely and with love in my heart but abuse is not tolerated. I have been known to give away too much power away over myself in love but I can always take that power back. Usually it’s at great cost to myself but I do get it back. I cry it out and I suffer for my foolishness because I have refused to believe someone even when they have shown me who they are but when someone becomes an ache and sadness that settles in your heart, when the sorrow is larger than the joy you have to make a choice to continue or save yourself. Many times we continue to fool ourselves, and when we receive a bone from the other person that makes us feel in the least bit wanted, we accept it greedily hoarding it as a child would their favorite toy. Letting it keep the fire of hope alive wanting it to light the fire of another heart which we really have no control over. Love is hard. As hard as it can be rewarding when its real and genuine. We go on this way too much, too often but its part of what makes us human. No one ever said love would be easy especially when it’s expected to endure. You would think in my 48 years I would have it figured out. Impossible but I treck on because though I have suffered and sometimes severely, I believe in people. I believe in love. I believe in being myself and giving.There’s something genuine about that, something pure and I love that about me.

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Things to deal with: After the transplant road…

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Only a person who’s been on dialysis or the people they allow on their journey know what its like and all of the additional complications that come along after you’ve been transplanted. It is an ever going road pebbled with pot holes and detours as well as open smooth stretches. Still it’s one we rather be on than the one we were before. I am one year into my transplant, on anti rejection medications I administer every 12 hours and living life as best I can. I must admit it’s been pretty smooth sailing for me and I am mighty grateful for I have met too many people who’ve had a very hard time even after we think it’s supposed to be easy.

Today there is a hurdle. The access I have not used for over a year has decided to clot on me and it’s pretty painful. I informed my doctor of the issue and now I must see a cardio vascular doctor to see what can be done to open it up which might mean surgery, don’t know yet. For those who have been on dialysis it feels like when you’ve had an infiltration, so you know the pain is real. I’m dealing with it as most of us must and do on a regular basis. We find strength from within and from those in our corner. We travel the road trying to avoid the pot holes and pray for smooth roads. Today I was called a trooper by someone I love but I don’t see myself that way. I am simply a survivor who has adapted to jumping these hurdles because the good times are worth living for.

To everyone on dialysis out there, may your roads be smooth. May your hurdles be few and most of all may your moments worth living for be many. THIS TOO SHALL PASS.

blogging · change · dialysis · empowerment · faith · fear · healing · health · illness · kidney disease · learning · life · love · transplant · truth · Uncategorized · writer · writing

The kidney is just the beginning: On the transplant Road

      

                 The last time I blogged I was still on dialysis twice a week two and a half hours a treatment. After six and a half years I was pretty much used to what my life was and how it was working out. Treatment didn’t bother me as much anymore and the pain was almost non existent or maybe I was just used to it. 

BUT THEN…

Just as I was all used to it on September 3, 2016 I received the call that has changed my whole existence. I got a kidney! My transplant happened when I least expected it. With a heart full of prayers for loved ones and friends I went to Saint barnabas medical center for my gift. On September 4 I had a new battery and ready to begin a new life with no more issues. But can you say hold up? 

Yes, we have no idea at least I had no idea that the transplant is just the beginning of the road. Not the end. The real work began after the blessing. 

Let’s talk about recovery shall we? 

I have been transplanted about three months now and currently in the hospital in a state I don’t even live in. I came to visit my mom for the holidays and my creatinine got too high so here I am admitted and awaiting. However I digress, I am still mighty blessed! Every day. 

When you first get a transplant you need your meds every twelve hours. The amount of pills vary from 20 to 30 Pills a day depending on how your organ is settling. See this organ was never yours. It’s a gift so you need anti rejection medications so you won’t loose it. You must work to keep it. This is why I say the work begins after the blessing. Along with medication comes recovery from a long suture on your belly. I had 20 some odd staples holding me together. Its difficult to walk but as the days go by you begin to feel better, more alive and healthier. My hair grew inches and my nails that never grew began to grow. My skin glowed and I became, though still recovering a new person. 

It is a difficult period in my life but full of miracles as well. I am getting there. Trust that I will. 

Getting used to the meds and the doctor twice a week in the beginning takes some getting used to. 

Blood work and urinalysis every week

Stint removal and fear of any little twinge on your access site wears on you but then you think about all of those years on dialysis and you’re mighty blessed and grateful despite side effects or anything else that comes along the most important thing to remember is that someone who died gave you life! 

This is a path. It has been my destiny thus far. I am on a road after all and I never forget that every road has hurdles and bumps and some even have mountains to arrive at the other side. This is my road and although sometimes it’s difficult and a trial I am fully faithful that God gave me this kidney and road for a reason. With his help, guidance and blessing I have my new battery and I’m ready to walk! 

Stay blessed and grateful! 

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A Place of Ones Own

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I have been a mother for what seem like most of my life. My three, now grown children were the essence of what I did and where I went for now twenty seven years of my life and I would not trade it for the world. Seeing them grow has been my privilege and blessing. Being a parent gives you a new perspective on life and all its trials give you strength you never thought you might possess. Still life comes with changes and my greatest change has arrived, an empty nest! That trial that all mothers and fathers eventually go through after spending half their lives raising children. It isn’t easy trust me I’m sure there are many parent out there that have no idea what to do with themselves after their children have gone.

I was one of those parents. I was stuck in the role of being a mom and being there for my children was all I did. That’s what moms do and we don’t regret it one bit. I am very proud of all of my children and I am honored to have devoted my time to them, that’s why I had them. Still the time has come for me to write a better story for myself. It’s time to dream of a future of my own. There are still many blessings to look forward to. You, We still have a life to live. one that hopefully has many years left. As a woman I find we need a sisterhood of women to help us do this. A place to develop all the other talents we may have hidden or placed on the back burner to attend our loved ones.  A group of like minded individuals to push us forward in our new adventure. We need mentors and a process by which to navigate and go to our destiny. This is your time!

What’s your story? What do you want for you? What is your dream?

Now, Go. Find it. Do it. Be it! I am with you.

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How to grow….. Effective Change

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         Changes are something that seems to come weather you want it or not. Sometimes you see it coming, the necessity of it loud and clear.

The time has come for change.

It can be any type of change for anything and still take you by surprise and be completely unexpected yet somehow you know. You know when something is not working and when it needs to change, when you need to change. 

BUT HOW?

  • How do you take those first difficult steps to make effective and lasting change?
  • What gives you the strength and purpose to move forward. You must be brave, I find.

You must be willing to do what you must without fear of how it will affect anyone else or their situation. I am not speaking of cruelty here or of not caring about people in general. I am speaking of doing what’s right for you. What makes you happy and leads you toward the purpose you find you are here for. Those are the greatest questions one must ask.

What makes you happy? Why are you here and what is your purpose. What do you want to get out of this life?

These questions have been plaguing me as of late. Breaking my concentration every time I find myself in a situation I know I don’t want to be in or doing something I don’t want to do. That’s where the knowing begins to surface and grow like a weed in your psyche. Making you unhappy. A symptom of being in a situation you don’t want to be in. A flashlight if you will on what you need to change. Those are poignant moments of clarity and we need to listen clearly and openly because they’re doors to we need to go through, roads we need to follow. Breadcrumbs in the forest of our destiny. 

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Serenity Now…

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Have you ever sat down and really thought about what brings you peace?
Have you ever contemplated in silence perhaps what really gives you that sense of total serenity and what you are willing to do to find and keep it?

I am sitting here thinking about just that and decided why not write about it. It’s funny but when I thought about serenity and peace, money was not the first thing to come to me. I didn’t think boy if I was rich I’d have peace. The first thing I actually thought of was an island paradise and silence.

Not the type with a huge hotel or luxurious amenities but a small island with clear blue water and simple palm trees with a hammock in between. A little cottage not far behind with a room full of books, the one I love, a warm fireplace in a cozy living room, dressed in pastel colors. That’s what sounds like serenity to me. There are no delusions of grand living in my dreams of peace, just simplicity.

I think deep down we all feel this way. I believe all we want is simplicity. The ability to live without having to stress about the most unnecessary things, all those things we think we can’t live without. The rub comes down to this.

What are you willing to do to get it?
Are you willing to live simply?
To give up all of those things you think you just can’t live without if it means you’d have that feeling of complete serenity?
Where is that place for you and are you willing to go there?

For me the answer is yes. Then again I have always been a simple person. Dialysis has taught me that life is not all it’s cracked up to be and neither are all those things we feel we can’t live without. It is surprising what we really “need” to live. If you were to really think on it you’d find it’s not much at all. I’ll even wager that if any of us were trapped in a paradise island like the one I dream of, few would refuse to stay. Most would give up the rat race and maybe even read a book.

May we all find our serenity soon.